Dalelorenzo's GDI Blog
14Jun/210

Master’s Student Submits Dissertation On Heart Condition That Caused Her Brother’s Death

Masters Student Submits Dissertation On Heart Condition That Caused Her Brother's DeathMolly Schiller/ Max's Foundation

When Molly Schiller's little brother Max passed away aged 10 from an undetected genetic middle condition called hypertrophic cardiomyopathy( HCM ), their own families knew very little about the disease.

Six years later, Molly , now 22, has just referred her Master's dissertation on the condition, carry out research that she hopes was ultimately lead to life-saving rehabilitations for people with the same condition as her brother.

Molly says she decided to pursue a profession in science after hurling herself into her GCSE studies as a mode of coping following Max's sudden death in 2015.' I instantly decided I wanted to specialise in heart requirements, because it was so personal to me, and to try to continue Max's legacy and make a definite inconsistency for other families who might be going through the same thing ,' she tells UNILAD.

Molly and her baby brother Max (Molly Schiller/Max's Foundation)Molly Schiller/ Max's Foundation

She'd also been learning about the condition through her family's charity, Max's Foundation, which they set up' around a kitchen table' shortly after his death to help raise awareness and funds for research into HCM, which alters around 1 in 500 beings in the US.

Through her investigate at the University of Birmingham's Institute of Cardiovascular Sciences, she's discovered that HCM has a wide a range of genetic compels, with vital investigate to identify genes associated with the condition necessary to help diagnose parties at an early age.' It's been fulfilling to feel like I've done my small part in helping the families affected by the condition ,' she says, adding that she's hopeful that her investigate will help provide a basis for future investigations.

Unfortunately, research in this field is still underfunded, and Max's Foundation has been pushing to raise money to help finance more studies into the condition. The benevolence has raised more than PS5 90,000 so far, and is hoping to raise another PS200, 000 through their fundraisers over the next couple of years.

Max's family set up Max's Foundation shortly after his death aged 10 (Max's Foundation)Max's Foundation

Molly says she tweeted about her dissertation to raise awareness of the condition, and to share how proud she was that she was able to do something in Max's memory. Her post promptly travelled viral, receiving more than half a million likes and several hundreds of words.' The response has been completely and entirely unexpected .' she says.' So many people have responded and messaged me to say they have or know people with the condition, but it's so rarely spoken about. I hope that the work I am doing now has changed that a little, and started the conversation.'

She's still waiting on her dissertation score, and says that while she'll be continuing her working in collaboration with Max's Foundation and is considering a PhD in the future, she's taking a bit of time off from the' hard and psychological' research work.

'I know people say that loved ones were a ray of sunshine all the time, but with him it was so true-blue ,' she says of Max.' My parents and myself are so so happy to be able to be able to share his appoint and smile with the world countries, and to know that helping other young children will be his legacy.'

'Everything that we do is for him.'

If you have a story you want to tell, mail it to UNILAD via story @unilad. com

Read more: unilad.co.uk

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